Funding medical research for Duchenne Muscular Dystrophy
Posted by CureDuchenne on Thursday, 14 December 2006 14:38:42
Hi David
Last year you joined the All Party Muscular Dystrophy Group to support our Charity's campaign (Parent Project UK) to win new Government funding for research to find a cure for Duchenne Muscular Dystrophy (DMD). As you know DMD is a severe muscle wasting disease that leaves our sons without any muscle and often dead by the time they are 20. There is currently no cure. The exciting thing for our families is that the UK is leading the world in new gene therapy research - exon skipping - that could provide the first real treatment for this terrible disease, as well as other diseases such as Cystic Fibrosis. The problem is that the researchers need around another £20m to get this gene therapy to the market. After a meeting earlier this month, the DoH have stalled our funding with the offer of a round -table talk.
When individuals in the City are receiving £20m bonuses, we think that its time for our society to get its priorities right and fund translational medical research for dying children?
Will you continue to support our campaign as a member of the All Party Group Muscular Dystrophy and ensure that the Government properly funds this exciting new gene therapy project ?
Duchenne Muscular Dystrophy